DCPPCC

Resource Guide

  1. Grief & Bereavement Services, Play Therapist
  2. Pediatric Resources for Famlies
  3. Books
  4. For Professionals
  5. Professional References

Grief & Bereavement Services, Play Therapist

  • Elizabeth Aparicio, LCSW-C, LICSW, RPT
    Registered Play Therapist
    Works with children who are anxious, depressed, grieving a loss, struggling with attention, and/or acting out at school or home.
    301-467-5374
  • Jennifer Anne Babcock, PsyD
    Psychologist/Play Therapist
    Dr. Babcok works with children within schools, hospitals, outpatient clinics, and juvenile justice system, and offers comprehensive psychological testing batteries, including emotional, cognitive, and academic assessment. When working with children she develops a collaborative relationship with parents, in order to facilitate positive change.
    703-231-7455
  • Heidi Bardot, MA, ATR-BC
    Registered and Certified Art Therapist
    George Washington Art Therapy
    703-282-0083
    202-994-8328
  • Camen Calatayud, MA, NCC
    Psychotherapist
    202-210-9412
    Carmen@bodymindtranquility.com
    www.bodymindtranquility.com
    Talk therapy, Body Psychotherapy, Expressive Arts Therapies
  • Bob Denmark, LGPC
    Psychotherapy & Counseling Services
    443-857-9822
    rjdenmark@msn.com
  • Mary Fitzgerald, LICSW
    Clinical Social Worker/Therapist
    Ms. Fitzgerald works closely with children and includes their parents/adult caregivers as a strong component of helping children reach their optimal potential.
    202-236-2160
  • Meredith Gardner, LPC, PLLC
    Provides individual therapy, family therapy, and play therapy for children, adolescents and adults.
    202-302-5671
    counseling@meredithgardner.com
  • Brigid C. Guttmacher, MA, LPC
    202-986-2303 home
    202-669-7161 cell
  • Elizabeth Haase, PhD
    specialist in sibling grief
    3000 Connecticut Avenue, NW
    Washington, DC 20008
    202-232-7877
  • Stephanie Herman, LMFT
    Psychotherapy
    Adults, Couples, Youth, Families
    703-734-1808
    703-734-1290 (fax)
    StephHrm@aol.com
  • Beth Kanter, LICSW
    Grief Counselor
    202-244-8300
  • Jean McCaw, MA, ATR-BC
    Registered and Certified Art Therapist
    703-968-4885
    703-966-5479
    creativejmccaw@aol.com
  • David McGinness, LCSW
    Grief Counselor
    703-349-3759
    703-717-7569
  • Robin McMahon
    703-966-7776
    703-533-0132
    rlmcmahon@verizon.net
  • Play-Based Physical Therapy
    202-546-7529
  • Psychology Today
    The Therapy Directory
    Provides a listing of area therapists containing a brief synopsis of training, education, skill sets, experience, etc. A good resource for those seeking additional support for pediatric patients, siblings and other family members.
    www.psychologytoday.com
  • MaryAnn Raybuck, LCSW
    Psychotherapist
    703-216-5509
    mraybuck@netzero.net
  • Kate Rickard, PsyD
    Psychologist/Play Therapist
    Dr. Rickard works with adults of any age, and has specialized training/experience with families and with children/adolescents, including play therapy for pre-school and young children.
    202-413-3124
  • J. Carlos Silva, Ph.D.
    Licensed Psychologist
    Bilingual: Spanish & English
    301-984-8444 phone
    301-984-8444 fax
    jcsilvapsy@yahoo.com
  • Adrienne M Syphrett, MA, ATR-BC
    Art Therapist
    202-269-6341
    240-305-3434
  • Wendy Webb
    Psychotherapist
    703-981-8404
  • William Wendt Center
    4201 Connecticut Avenue, NW
    Suite 300
    Washington, DC 20008
    202-624-0010
  • Danny Wilson, LICSW
    Counselor
    2000 P Street, NW
    Suite 412
    Washington, DC 20036
    202-669-5959 cell
    202-363-2846 - fax

Pediatric Resources for Families

  • Aiding Mothers and Fathers Experiencing Neonatal Death (www.amendgroup.org)

    Offers a free counseling service to parents who have experienced the loss of an infant through miscarriage, stillbirth, or neonatal death. Its main purpose is to offer support and encouragement to parents having a normal grief reaction to the loss of their baby.

  • Alliance of Grandparents, A Support in Tragedy (www.agast.org) Produces a quarterly newsletter, and features a section on resources and a place to post memorials.

  • American Academy of Pediatrics (www.aap.org)

    The American Academy of Pediatrics is an organization of 60,000 pediatricians dedicated to the attainment of optimal physical, mental, and social health and well-being for all infants, children and young adults. 202-347-8600

  • BabySteps (www.babysteps.com)

    Provides resources for parents, siblings and other family members, including a remembrance room, bereavement sharing rooms, and bereavement resource rooms with a section on "do's and don'ts." Other sections of site list literature for adults and literature for children-each offering short descriptions/comments on the many titles listed.

  • Bereaved Families of Ontario (www.bereavedfamilies.net)

    This site of Bereaved Families of Ontario-a longstanding, well-established organization-offers many types of support groups and activities for many different types of family bereavement situations (children, adolescents, parents, etc.). BFO has numerous affiliates throughout the Canadian province of Ontario.

  • Candlelighters Childhood Cancer Foundation (www.candlelighters.org)

    This web site serves as a support group for parents whose children are living with or have died from cancer.

  • Caring Connections (www.caringinfo.org)

    A program of the National Hospice and Palliative Care Organization that offers consumer information for parents of ill children.

  • CATCH Community Access to Child Health

    The Community Access to Child Health is a national program of the American Academy of Pediatrics (AAP) designed to improve access to health care by supporting pediatricians and communities that are involved in community-based efforts for children. catch@aap.org

  • Center to Advance Palliative Care (www.capc.org)

    The Center to Advance Palliative Care (CAPC) provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings. CAPC is a national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness. 212-201-2675

  • Children's Hospice and Palliative Care Association (www.partnershipforparents.org)

    This association offers a support network for parents of children with serious illnesses, with access to handouts and discussion forums for parents. Information is available in Spanish.

  • Children's Hospice and Palliative Care Coalition (www.childrenshospice.org)

    This California partnership advocates for legislation and has developed the Partnership for Parents web sites-see the Partnership for Parents entry below.

  • The Compassionate Friends (www.compassionatefriends.org)

    This national nonprofit self-help support organization offers friendship and understanding to bereaved parents, grandparents, and siblings. Community Pediatrics This page provides links to a variety of resources and tools to help you plan and implement community-based initiatives to improve child health. docbi@aap.org

  • Dougy Center (www.grievingchild.org)

    A nonprofit organization that provides peer and professional support to grieving children. The Dougy Center's mission is to provide a safe place for children and families to share their experiences.

  • Grief and Loss (www.aarp.org/griefandloss)

    The AARP Grief and Loss Program has been in existence since 1973 and offers eCards, online journals, a discussion area, and articles on coping with the loss of specific loved ones.

  • Hygeia (www.hygeia.org)

    Brings together an international community of families who have endured the tragedy of miscarriage, stillbirth and neonatal/infant loss. Online since 1995 and with over 28,000 members, Hygeia has become the most enduring program of compassion, empathy and support pertaining to Perinatal loss. There are poems and a place for memories and mementos. There is a 24-hour, toll-free support line, and links to journaling opportunities for healthcare providers. The large database of families allow links between families whose fetus/newborn has a rare condition. Information is accessible in Spanish as well.

  • Highmark Caring Place (www.highmarkcaringplace.com)

    A center for grieving children, adolescents and their families.

    3 Walnut Street
    Suite 200
    Lemoyne, PA 17043
    Gerald Gaugler, MS
    Education & Outreach Coordinator
    Child Grief Specialist
    717-302-8402 phone
    717-302-8420 fax
    Gerald.gaugler@highmark.com

  • Mothers in Sympathy and Support (www.misschildren.org)

    A nonprofit, international organization which provides immediate and ongoing support to grieving families, empowerment through community volunteerism opportunities, public policy and legislative education, and programs to reduce infant and toddler death through research and education. Provides information in Spanish.

  • National Organization of Parents of Murdered Children, Inc. (www.pomc.com)

    Provides the ongoing emotional support needed to help parents and other survivors facilitate the reconstruction of a "new life" and to promote a healthy resolution. Not only does POMC help survivors deal with their acute grief, but also with the criminal justice system.

  • National SIDS/Infant Death Resource Center (www.sidscenter.org)

    Provides information and resources (professional and non-professional) about Sudden Infant Death Syndrome, stillbirths, and miscarriages. Provides information in Spanish.

  • Partnership for Parents/Padres Compadres (www.PartnershipforParents.org/www.PadresCompadres.org)


    Excellent online resources for parents whose children have been diagnosed with a life-threatening or life-shortening illness, are receiving treatment, or have died.

  • Pediatric AIDS/HIV Care, Inc. (www.pediatricaidshivcare.org)

    Provides children living with HIV/AIDS with education, therapy, and youth programming to empower them to live healthy and successful lives. The organization provides a comprehensive range of psychosocial services designed to meet the complex needs of children and adolescents affected by HIV/AIDS.

  • Pregnancy and Infant Loss Support (www.nationalshareoffice.com) SHARE's mission is to serve those who are touched by the tragic death of a baby through miscarriage, stillbirth or newborn death. Its web site offers a packet of grief literature, information on local chapters, bimonthly newsletter, and resources.
  • Subsequent Pregnancy After a Loss Support (www.spals.com)

    SPALS features an e-mail based, self-help listserve service for people who are pregnant or hoping to be pregnant after an infant or prenatal loss.

  • Sudden Infant Death Syndrome Alliance (www.sidsalliance.org)

    Another good general resource on SIDS.

  • Survivors of Suicide (www.afsp.org)

    This is a comprehensive site for survivors of loss from suicide. It contains a directory of SOS chapters, excerpts from the organization's quarterly newsletter, and suggestions for suicide survivors. Local and national programs, tips for coping, and information about the causes of suicide, etc. are all presented in a clear and easily navigable site.

  • UpToDate for Patients (www.uptodate.com)

    UpToDate is the largest clinical community in the world dedicated to synthesizing knowledge for clinicians and patients. The community includes over 4,400 expert clinicians who function as authors, editors and peer reviewers and over 385,000 users who provide feedback and questions to our editorial group. The UpToDate role is to facilitate interaction among members of the healthcare community and to synthesize and disseminate information in order to help clinicians provide better care.

  • Winston's Wish (www.winstonswish.org.uk)

    The premier British support group center for bereaved children and their families. Runs weekend residential camps, offers telephone and online resources, works in collaboration with educators and members of the community, and has a splendid book by J. A. Stokes: Then, Now and Always- Supporting Children as They Journey Through Grief: A Guide for Practitioners.

Books

  • Ash, L. (2004). Life Touches Life: A Mother's Story of Stillbirth and Healing.
  • Beggins, Jeanne P. (2004). A Book of James.
  • Bramblett, J. (1991). When Good-Bye Is Forever: Learning to Live Again after the Loss of a Child.
  • Crider, T. (1996). Give Sorrow Words: A Father's Passage Through Grief.
  • Daher, D. (2003). And the Passenger was Death: The Drama and Trauma of Losing a Child.
  • DeFord, F. (1997). Alex, the Life of a Child.
  • Fleming, D. (2005). Noah's Rainbow: A Father's Emotional Journey from the Death of His Son to the Birth of His Daughter.
  • Koppelman, K. L. (1994). The Fall of a Sparrow: Of Death and Dreams and Healing.
  • Kushner, H. When Bad Things Happen to Good People.
  • Leach, C. (1981). Letter to a Younger Son.
  • Orloff, S. & Huff, S., editors. (2003). Home Care for Seriously Ill Children.
  • Sarnoff Schiff, Harriet. The Bereaved Parent. Penguin Books.
  • Schrauger, B. (2001). Walking Taylor Home [ISBN 0-8499-1703-4].
  • Smith, G. H. (2006). Remembering Garrett.
  • Stinson, R., & Stinson, P. (1983). The Long Dying of Baby Andrew.
  • Wagner, S. (1994). The Andrew Poems.

Children's Books on Death Related Issues

  • Carney, K. L. (1997-2001). Barklay and Eve Activity and Coloring Book Series.
    Dragonfly Publishing Company, Wethersfield, CT (277 Folly Brook Boulevard, Wethersfield, CT 06109; tel. 860-257-7635; www.barklayandeve.com).
    Each of the eight titles in this series examines a topic adults may find difficult to discuss with children, such as going to a funeral, understanding cremation, hospice, pet loss, and organ and tissue donation. There is room for a child to draw and color while learning lessons like: loss and sadness do happen; those events are not anyone's fault; it is OK to have strong feelings as long as they are expressed in constructive ways; and "we can get through anything with the love and support of family and friends" (Book 1, p. 5).
  • Fox, M. (1994). Tough Boris.
    New York: Harcourt Brace.
    Boris von der Borch is a huge, tough, scruffy, greedy, fearless, and scary pirate—just like all pirates. But when his parrot dies, Boris cries and cries— just like all pirates, and everyone else. A simple story and pictures give children permission to experience and express their grief.
  • Muñoz-Kiehne, M. (2000). Since My Brother Died/Desde Que Murió Mi Hermano.
    Omaha, NE: Centering Corporation.
    With text in both English and Spanish, a child wonders if a brother's death is only a dream or if anything could have been done to prevent his death. The child and his family are sad. Afraid of forgetting his brother, the child begins to paint—simple watercolor illustrations gradually turn into rainbows and the confidence that life can go forward.
  • Raschka, C. (2007). The Purple Balloon.
    New York: Schwartz & Wade.
    This book observes that children who draw their feelings when they become aware of their impending death often draw a blue or purple balloon, released and floating free. Here balloon images first depict the death of an elderly person before turning to a dying youngster. The text says, "Good help makes leaving easier" and offers suggestions for those who want to help make dying not so hard.

Storybooks and Other Texts for Primary School Readers

  • Adams, G. (2006). Lessons from Lions: Using Children's Media to Teach about Grief and Mourning + CD.
    Little Rock, AR: Center for Good Mourning, Arkansas Children's Hospital (800 Marshall Street, Slot 690, Little Rock, AR 72202).
    This booklet explains how to use 10 slides from Disney's The Lion King (1994) to encourage discussions about three unhelpful reactions following a loss: (1) running away from the problem, the pain, and those who love you; (2) pretending the bad thing never happened; and (3) never telling anyone about your feelings and experiences them. The positive lesson is: By not making any of these mistakes, we can keep the person with us in our hearts.
  • Alexander, S. Nadia the Willful.
    New York: Dragonfly Books, 1983. (SA) Upon the death of Nadia's brother, her father, the sheik, decrees that no one shall mention his name. For Nadia, not speaking about her brother means not remembering him. The headstrong Nadia finds a way to keep memories of her brother alive, and helps her father remember, too. Aliki. The Two of Them. New York: Greenwillow books, 1979. (PS/SA) This story of a loving relationship between grandfather and granddaughter is written in verse. Text and illustrations tell of cherished memories following the grandfather's death.
  • Anderson, L.C. It's Okay to Cry.
    Chicago: Children's Press, 1979. (SA) A four yeard old boy tries to tell his five year old brother that their favorite uncle is dead. In the second part of the book, there are questions and answers that relate to the story and to the general topic of death.
  • Bernstein, J.E. Loss and How to Cope with It.
    New York: Seabury Press, 1977. (AD) This book focuses on the death of a loved one and personal stories about the feelings associated with sucha profound loss. Chapters include What Happens When Someone Dies, Your Feelings, You Can Handle Your Feelings, and Living with the Survivors.
  • Blume, J. Tiger Eyes.
    Scarsdale, New York: Bradbury Press, 1981. (SA/AD) This fictionalized account of a teenager whose father has just been killed provides a wonderful analysis of normal feelings.
  • Borack, B. Someone Small.
    New York: Harper & Row, 1969. (PS) A Story about family life and getting along with a little sister; about the death of apet bird, and the children's way of saying good-bye.
  • Breebaart, J. & Breebarrt, P. When I Die, Will I Get Better?
    New York: Bedrick Books, 1993. (PS) This story, as told by a five year old grieving the death of his younger borhter, tells of Fred Rabbit's illness, death and funeral. Over time, Fred's brothe is able to express his feelings and finally play happily with his friends again.
  • Brooks, M. Two Moons in August.
    Boston: Little, Brown, and Company, 1991. (AD) Kieran, a new boy visiting Sidonie's small town for the summer, helps Sidonie and her family come together again following the death of her mother.
  • Brown, K. B. & Brown, M. When Dinosaurs Die: A Guide to Understanding Death.
    Boston: Little, Brown and Co., 1996. (PS/SA) Another in the popular dinosaur series from Laura and Marc Brown. Contents include "What does alive mean?," "Why does someone die?," "What does dead mean?,"Feelings about death," "Saying good-bye," "Keeping customs," and "Ways to remember someone."
  • Brown, M.W. The Dead Bird.
    Rading, MA: AddisonWesley, 1965. (PS/SA) This classic tells the story about a group of children who find a dead bird in the park and decide to hae a burial and funeral. Each day they return to the grave with flowers. They continue "until they forget."
  • Bunting, E. (1999). Rudi's Pond.
    New York: Clarion. While Rudi is sick, his friend and classmates send cards and make a big "GET WELL RUDI" banner for his hospital room. After Rudi dies, the children write poems and make a memorial pond in the schoolyard that attracts a beautiful hummingbird.
  • Dickerson, J. G. (1995). Grandpa's Berries: A Story to Help Children Understand Grief and Loss.
    Johnstown, PA: Cherubic Press. On a visit to her grandparents, Alice tastes a wonderful, orange-gold raspberry. Later, after Grandpa has died, Alice discovers that the raspberry bush is also dead. As they share their grief, Alice's mother says she will never forget the special taste of those berries even though now they are gone. The same will be true for Grandpa: "The remembering will become easier until one day you'll notice that all that's left is the sweetness that you remember. Just like the berries."
  • Goldman, L. (2006). Children Also Grieve: Talking About Death and Healing.
    Philadelphia, PA: Jessica Kingsley Publishers. This book combines a story told by a dog named Henry and his questions to readers, a section for making a memory book, a two-page glossary of grief words, and advice for caring adults. Henry's story uses photographs and text to tell about the sadness following the death of Grandfather. He explains what death means, what grief is like, things to do when you are sad or scared, and ways to feel a bit better. Blank spaces allow readers to respond to questions.
  • Grollman, E., & Johnson, J. (2006). A Complete Book About Death for Kids.
    Omaha, NE: Centering Corporation. The three main parts of this book address death and feelings, funerals and cemeteries, and cremation, respectively. Most pages have photos and a few simple sentences directed to child readers and adults who might interact with those children.
  • Hemery, K. M. (2001). The Healing Tree.
    Omaha, NE: Centering Corporation. This story compares grief in a family to a tree struck by lightning. Just as the tree lost one of its main branches leaving only a bare strip on its trunk where there is no bark, Papa says that they are all in pain after Mama's death. But like the tree, Papa says they will heal and go on living, even though life will be different and forever changed.
  • McLaughlin, K. (2001). The Memory Box.
    Omaha, NE: Centering Corporation. A young boy is mad at Grandpa for dying when he had promised to take the boy fishing. Mommy agrees the boy will miss doing things with Grandpa, but she tells him to hold onto good memories of all they shared. One way to do that is to make a memory box and to put into it objects that help the boy remember this special relationship.
  • Peterkin, A. (1992). What About Me?
    Washington, DC: Magination Press. Laura and Tom are siblings who often play together and sometimes quarrel. One day Laura learns that Tom is sick and in the hospital. She misses Tom, feels responsible for his illness, and worries he might die. Their parents and other adults seem to focus only on Tom, while ignoring Laura's needs. Finally, Laura's parents and the doctor explain Tom's illness to her, let them play together, and take her out for a special treat.
  • Plourde, L. (2003). Thank You, Grandpa.
    New York: Dutton Children's Books. On their walks in the woods over the years, a girl and her grandfather share many discoveries. When they find a dead grasshopper, the girl asks, "What can we do?" Grandpa says: "We can say thank you and good-bye." Years later, as the girl walks alone, she says to herself: "Thank you, Grandpa, for our walks. You kept me steady when I wasn't so steady. You let me run ahead when I was ready to run ahead. . . . But most of all, thank you for teaching me the words I need to say. . . . Grandpa, I love you and I'll miss you. But I will never forget you. Thank you and good-bye."
  • Schwiebert, P., & DeKlyen, C. (1999). Tear Soup: A Recipe for Healing after Loss.
    Portland, OR: Grief Watch (2116 NE 18th Avenue, Portland, OR 97212; 503-284-7426; www.tearsoup.com). "An old and somewhat wise woman" called Grandy who has just suffered a big loss in her life fills a soup pot over and over again with her tears, feelings, memories, and misgivings. Rejecting foolish advice, Tear Soup affirms all of the feelings and experiences that bereaved persons encounter, while encouraging them as they cope with loss and grief.

For Professionals

Professional References

  • American Academy of Pediatrics Committee on Bioethics and Committee on Hospital Care, Palliative Care for Children. Pediatrics, Aug 2000; 106: 351-357.
  • American Academy of Pediatrics Committee on Pediatric Emergency Medicine, AAP. Emergency Preparedness for Children with Special Health Care Needs. Pediatrics 1999; 104: 53.
  • American Academy of Pediatrics Committee on Pediatric Workforce, Culturally Effective Pediatric Care: Education and Training Issues. Pediatrics 199; 103:167.
  • American Academy of Pediatrics Committee on Pediatric Workforce. Ensuring Culturally Effective Pediatric Care: Implications for Education and Health Policy. Pediatrics, December 2004, pp. 1677-1685.
  • American Academy of Pediatrics Committee on School Health and Committee on Bioethics, Do Not Resuscitate Orders in Schools. Pediatrics Vol. 105 No. 4 April 2000, pp. 878-879.
  • A Paradigm for Making Difficult Choices in the Intensive Care Nursery (Benitz), Cambridge Quarterly of Healthcare Ethics, 1993.
  • Armfuls of Time: The psychological Experience of the Child with a Life-Threatenign Illness (Sourkes), Pittsburgh: University of Pittsburgh Press. 1995.
  • Caring for Kids: How to Develop a Home-Based Support Program, NHPCO. [Item 820285; www.nhpco.org/marketplace].
  • Care of the Dying Child (Goldman, ed.), Oxford University Press, Oxford, UK, 2002.
  • Education and Traiing Curriculum in Pediatric Palliative Care, NHPCO. [Item 820285; www.nhpco.org/marketplace].
  • Family Perspectives on the Quality of Pediatric Palliative Care (Larson, Scofield, Sourkes, Cohen), Archives of Pediatric and Adolescent Medicine. 156, Januarya 2002, 14-19.
  • Food, Toys and Love: Pediatric Palliative Care (Sourkes, Frankel, Brown, Contro, et al), Current Problems in Pediatric and Adolescent Health Care, 2005; 35, 9, 345-392.
  • Handbook of Adolescent Death and Bereavement (Charles A. Corr, and David E. Balk, editors(, Springer Publishing Co. NY. 1996.
  • Handbook of Childhood Death and Bereavement (Charles A. Corr and Donna M. Corr, editors(, Springer Publishing Co., NY. 1996.
  • Hospice Care for Children (Armstrong-Dailey an dZarbock, editors(, Oxford University Press: New York, 2nd edition (3rd edition in press).
  • Hospital Staff and Family Perspectives Regarding the Quality of Pediatric Palliative Care (Contro, Larson, Scofield, Sourkes, Cohen) Pediatrics 2004: 113: 1248-1252.
  • LexiComp Pediatric Dosage Handbook (www.lexi.com).
  • Medical Education about End-of-Life Care in the Pediatric Setting: Principles, Challenges, and Opportunities (Olle, Sahler, Frager, Levetown, Cohn, and Lipson), Pediatrics, March 2000; 105: 575-584.
  • Oxford Textbook of Palliative Care for Children (Goldman, Hain, Liben).
  • Oxford Textbook of Palliative Medicine (Doyle, Hankes, Cherny, Calman, editors), Oxford University: New York, 3rd edition (4th edition in press).
  • Oxford Textbook of Pediatric Palliative Care (Goldman, Haines, and Liben, editors, London Oxford University Press, 2006.
  • Palliative Care for Infants, Children, and Adolescents: A Practical Handbook (BS Carter, M Levetown, ed.), Johns Hopkins University Press.
  • Pediatric Pain Management and Sedation Handbook (Yaster, Krane, Kaplan, Cote, Lappe, Mosby).
  • Pediatric Pain & Symptom Management Algorithms for Palliative Care (L Wrede-Seaman). (intelicard.com/hospicekids.html).
  • Pediatric Palliative Care: The Role of the Intensivist (Frankel), Current Concepts in Pediatric Critical Care, 2007.
  • Textbook of Palliative Nursing (Ferrell, Coyle).
  • The Deepening Shade: Psychological Aspects of Life-Threatening Illness (Sourkes), Pittsburgh: University of Pittsburgh Press. 1982.
  • Video: Making Every Moment Count (Leorra Kuttner), Fanlight Corporation.
  • When Children Die: Palliative and End-of-Life Care for Children and Their Families (Field). National Academy Press (www.nap.edu).
  • YNIPAC series (www.aahpm.org).



Together we're better - DC Pediatric Palliative Care Support Group